Save My Kid : How Families of Critically Ill Children Cope, Hope, and Negotiate [Hardcover]

A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children

Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. In Save My Kid, Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in the United States.

Gengler reveals the unrecognized, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their childrens critical illnesses. She also uncovers the role that emotional goalsdeeply rooted in the culture of illness and medicineplay in medical decision-making, healthcare interactions, and the end of childrens lives.

A deeply compassionate read, Save My Kid is an inside look at inequality in healthcare among those with the most at stake.

Gengler's measured yet empathetic tone sets an example for all sociologists writing on emotionally charged topics. As intense as her account oftentimes is, it never devolves into empty sensationalism. The result is an eloquent and memorable illustration of how social inequalities play out in hospitalsa solid contribution to medical sociology, the sociology of emotions, and scholarship on culture and inequality. Amanda Gengler movingly captures the high-stakes world of families coping with severe childhood illness and their struggle to maintain hope as they navigate the contemporary health landscape where inequality abound. A vivid demonstration of health as an arena that intensifies inequalities between families. With deep empathy and drawing from personal experience, this mesmerizing ethnography explores the opportunities and pitfalls of hope when parents face the challenge of their childs life threatening disease. Rather than pinning all our hopes on hope, l#-