The Subjectively Perceived Wellbeing of People with Prader-Willi Syndrome: The Criteria for the Quality of Care [Paperback]

Many people work towards a goal of experiencing high levels of wellbeing. However, wellbeing is a highly subjective notion. In order to determine some parameters of such a multifaceted concept, this study introduces five areas representing subjectively perceived wellbeing: positive feelings, engagement (flow), social relationships, meaningfulness, experience of self-efficacy. On the basis of these five areas, diverse methods are then presented that map individual characteristics in the respective areas of people with Prader-Willi syndrome (PWS). Different methods and procedures discussed in this work can contribute to increasing the level of development in each of the areas, enabling the evaluation of existing PWS services, the assessment of development processes and the comparison of services in the PWS area.