Biobanks and Tissue Research The Public, the Patient and the Regulation [Paperback]

The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.

This book presents a comprehensive overview of the field of biobanks and human tissue research, including ethical and legal challenges, regulatory issues, the rights of donors and patients, and examples and recommendations for the future of tissue research.

?Biobanks, tissue research and the public

?Public trust and public bodies: The regulation of the use of human tissue for research in the United Kingdom
?Julie Kent, Ruud ter Meulen

?Biobanks and research: scientific promise and regulatory challenge
?Bernice S. Elger, Nikola Biller-Andorno

?A sense of entitlement: individual vs. public interest in human tissue
?Nils Hoppe

?Social aspects of biobanking: Beyond the public/private distinction and inside the relationship between the body and identity
?Federico Neresini

?The Rights of donors and patientsl£ç